Comments for PMP Awareness Blog

Comment on A Pill That Can Prevent Cancer by joan

Wed, 18 Jun 2008 20:02:52 +0000

My boyfriend of 27 yrs underwent 8 hr. surgery at Mt Sinai 2 weeks ago with
HIPC (hot chemotherapy) and unfortunately a golf size tumor in the small
intestine was not removed and he will have to have chemotherapy when
he is well enough to try to shrink this tumor. I haven’t read any information
about treatment after surgery and was wondering if you know of anyone
who went through the same thing.

We were also told by his oncologist at the hospital near us that there was
no surgery for this type of cancer.

thanks for any info.

joan

Comment on Milestones by Laurene Nason

Thu, 13 Mar 2008 22:55:25 +0000

I had MOAS August 2007 and the one thing I wanted to celebrate was my next birthday. I stated at the time I will celebrate every milestone with praise and thanksgiving. Even after the fact it is so nice to find this site. Last week I had the ileostomy reversed, thank you for the info you posted - now I know what to expect.

Comment on Life After the MOAS by drjuewel

Fri, 18 Jan 2008 03:34:49 +0000

Hi, my hubby is scheduled for the MOAS, in Feb 08, with Dr. Sugarbaker. I’m seeking some more information on how to manage the insurance companies. I have read the Laurie Todd book, and still looking to see if any one else has a simpler way to deal with issues on their insurance. Will the insurance pay Dr Sugarbaker deposit or not? Please drop a note… Drjuewel…

Comment on Life After the MOAS by Lynda

Sun, 23 Dec 2007 08:06:36 +0000

hi! I had two surgeries. The first was in March 2007. I had to have a total hysterectomy and removal of my ovaries. I also had a right hemicolectomy. In September 2007 I had the MOAS. It was an exploratory laparotomy, removal of my omentum w/heated chemo. I was out of the hospital in FOUR DAYS. I did have to go back in overnight when I returned home. My surgery was 09/10/2007. I went back to work on 10/15/07. I started at the gym walking the treadmill at the end of November. It was a painful recovery, I have a thirteen inch incision, but I am doing well!!! Keep the faith. It is scary facing this surgery, but you can do it!

Comment on Welcome to Our Blog by judy herndon

Mon, 17 Dec 2007 03:26:19 +0000

harriet, please email me and let me know what’s in your diagnosis as I have been told I have pmp was diagnosed in April,2007 = have been to Dr. Levine and really liked him, he was informative.
herndonju@aol.com (judy herndon)

Comment on Welcome to Our Blog by judy herndon

Mon, 17 Dec 2007 03:23:32 +0000

Elise please advise about your surgery with Dr. Levine at Wake Forest Medical Center - I am currently seeing Dr. Levine (next appointment Jan.2008) would like to know how you’ve recouped and how long, etc. email me at herndonju@aol.com if you don’t mind sharing your experiences with me.

Comment on Welcome to Our Blog by Jane Stone

Sat, 01 Dec 2007 08:53:33 +0000

I am scheduled for surgery with Sugsrbaker on Dec. 27th. If you can get in to see him, he has the best track record for survival. I’m a big proponant of cytoreductive surgery plus the intreperitonal chemo, as the disease seems to come back without these two processes. A lot of the docs don’t do it all… Dr. Sticca in North Dakota does, but he’s only done 30 to 40 cases. I understand Dr. Sardi has done 500 cases. Just ask the right questions:
do they do cytoreduction plus the chemo?
how many of these cases have they done and what are the outcomes? how long do people live after their surgeries. The more you have done, the grater your chances the cancer can lurk in scar tissue. What do they project your survival rate to be, given their chosen choice of next action.
Forget about bedside manner, if they are nice but say they don’t beleive that can’t get it all, Run to a speciaist and fight out how to get on their schedule.
Then try Laurie Todd’s book, it can be instrutional… and the PMP Bellybuttons website.
all the best,
Jane

Comment on Positive Thinking - Faith by Ray DArgento

Sat, 24 Nov 2007 13:22:14 +0000

To Bob: - Faith
I just had debulking surgery of the colon region and hypertherimic chemo. Now they suggest going through systemic chemo (colon cancer regimens)- Oncologist point of view due to some remaining malignant cells low grade to moderate near the surgery margins. I feel like saying the hell with it, recover and get strong from the operation, then like your comments live- race my mini cooper, seriously set up a business - selling my art work, discovered I had some painting skills just 2 years ago. My oncologist wants to treat PMP like colon cancer, and my surgeon says there’s no post surgry systemic PMP studies that show anything. I am confused, probably will do the chemo may or may not have any effect, and waste that time instaed of living…Ray

Comment on Life After the MOAS by Ray DArgento

Sat, 24 Nov 2007 12:28:32 +0000

I just had MOAS in Boston at Tufts New England Medical Center (hyperthermic Mitomycin-c, debulking of tumor in colon area). If you need a PMP surgeon in the Boston area Call Dr. Martin Goodman 617-636-9248. He is the only surgeon in Boston and Mass that treats PMP and New England Medical Center the only center that does Hyperthermic Chemo, hard to believe with all the top medical centers in Boston. He only started this current June (Boston) but experienced at other centers. PMP is so rare, until you have it. I’m 4 weeks past MOAS, but have some malignant PMP cells hanging around, low to moderate grade on small portions of the margins where they removed part of my colon. I am wearing a temporary Ileostomy bag. QUESTION: The oncologist wants be to start post surgery chemo to clean up what’s left…She is now calling what I have colon cancer now,(don’t understand this?) and suggested colon cancer post surgery chemo regimens. I am going to try taking the oral form of 5FU and infused oxaliplatin. I’m also on Coumadin and there is a dangerous drug-drug interaction between the two is bleeding, some fatal. Anyone out there with PMP surgery taken post systemic chemo, what regimen did you go with? side effects? Or is it even worth it, any PMP studies,(I heard not any) not colon cancer studies - I will talk with my surgeon before I make my final decision on the chemo… Thanks, Ray.

Comment on One Day at a Time by Brenda

Thu, 08 Nov 2007 22:51:42 +0000

Thoughout the day I say to myself
“At least I have this day.”
I say it out loud.
Some wonder what I mean - I don’t waste my time explaining.
Every minute of every day is a gift.
I cherish them all.